On World Autism Day, Aster Calls To Support Menstruation Management In People Of Determination

On World Autism Day, Dr. Mehnaz Abdulla, Specialist Gynaecology/Obstetrics at Aster Women Clinic in Al Qusais (Damascus Street), shares a compelling insight into the challenges faced by caregivers of People Of Determination, particularly in managing menstruation.

Drawing from her first-hand experience during her residency in India and subsequent years of research, Dr. Abdulla highlights the struggles and the urgent need for more inclusive healthcare policies and support networks.

Understanding the Struggle

Dr. Abdulla recounts her initial encounter with a non-verbal, intellectually disabled woman in her mid-thirties, whose parents sought a hysterectomy due to difficulties in managing her menstruation. This experience was a turning point for Dr. Abdulla, prompting her to explore how many more parents face similar challenges silently. Through conversations with these caregivers, she identified several major issues, including compliance with using sanitary products and the irregularity of menstruation, which pose significant hurdles in maintaining hygiene.

The Challenge of Menstrual Hygiene Management

The use of sanitary products is particularly problematic, as many girls with sensory issues are non-compliant. Dr. Abdulla recalls a mother's struggle to acclimatize her daughter to using pads, a journey that involved trying various brands and even cloth, yet required constant monitoring. Additionally, the erratic onset of periods complicates hygiene management for those with intellectual challenges and communication impairments.

Addressing Pre-menstrual Syndrome (PMS)

PMS, a common occurrence among women, can lead to meltdowns and aggressive behavior in individuals unable to articulate their discomfort. The emotional and physical toll on caregivers, especially mothers, is immense, with increased stress during their daughters' menstrual cycles and a brief respite until the cycle repeats. The lack of support and guidance has led some parents to consider drastic measures such as hysterectomy.

Seeking Solutions

Dr. Abdulla emphasizes the importance of open dialogues about puberty and menstruation, which can be challenging for girls. She suggests a personalized approach, including the use of flashcards, social stories, and demonstrations on dolls, tailored to the child's verbal abilities, comprehension level, and sensory issues. Starting early and adapting strategies to the individual's needs are crucial for a smoother transition through puberty.

The Path Forward

There is a pressing need for policies and services focused on the reproductive health of People Of Determination, alongside a helpline and support network for caregivers. Sharing advice and practical solutions from experienced caregivers could significantly enhance the quality of life for affected girls and their families. Dr. Abdulla advocates for perseverance in finding the right approach and underscores the importance of never giving up in the face of frustration.

Dr. Abdulla's insights shed light on the overlooked aspects of caregiving for People Of Determination. Addressing these challenges through comprehensive support systems and inclusive healthcare policies is essential for improving the lives of these individuals and their caregivers.